Sümptomid
Elu IBD-ga: väsimus, valu ja mõõtmata osad
Remissioon paberil ja remissioon kogetuna on kaks erinevat asja ning just selles lõhes peitub suurem osa koormusest.
Väsimus
Väsimus on üks sagedamini teatatud sümptomeid IBD korral ja üks harvemini ravitud sümptomeid. See püsib suurel osal inimestest, kelle põletik on kontrolli all, mis tähendab, et see ei ole pelgalt haigusaktiivsuse näitaja.
Põhjustajate hulka kuuluvad aneemia (rauapuudus on väga levinud ja korrigeeritav), unehäired, ravimite toime, krooniline põletik ning ettearvamatu haigusega kaasnev psühholoogiline koormus. Korrigeeritavaid põhjuseid tasub sihilikult uurida, sest keegi ei tõstata neid teie eest viieteistkümneminutilisel visiidil, mis keskendub kalprotektiinile.
Väsimuskoormus IBD korral
Vaimne tervis
Ärevuse ja depressiooni esinemissagedus IBD korral ületab oluliselt tausttaset. Ilmne seletus — elamine ettearvamatu, häbimärgistatud ja mõnikord inkontinentsust põhjustava haigusega on koormav — on tõene, kuid tõenäoliselt mitte kogu tõde, arvestades põletikulisi ja soole-aju radu, mida käsitleme meie soole-aju tõendusmaterjali lehel.
Praktiliselt on oluline see, et see on ravitav, kuid jääb tavaliselt tähelepanuta. Psühholoogiline tugi on Euroopa juhistes IBD ravi osa, kuid seda pakutakse ebaühtlaselt.
Praktiline koormus
- Tualeti kättesaadavuse ärevus, mis piirab reisimist, tööd ja sotsiaalset elu rohkem, kui arstid tavaliselt mõistavad.
- Ettearvamatus. Planeerimine on raske, kui haigushoog võib tulla ilma hoiatuseta.
- Toitumise juhtimine. Individuaalsed vallandajad, kinnitatud loetelu puudub ja vastuolulisi soovitusi jagub rohkelt — vt toitumine.
- Töötamine. Väsimus ja sooletung sobivad halvasti jäikade töögraafikutega.
- Reisimine. Ravimite säilitamine, toiduohutus ja ligipääs — käsitletud meie reisitervise lehel.
Epidemioloogia
IBD haigestumus on Euroopas ja Põhja-Ameerikas kõrge ja stabiilne ning kasvab järsult äsja industrialiseerunud riikides. See geograafiline muster on üks tugevamaid argumente keskkonnateguri olemasolu kasuks — kandidaatideks on toitumine, hügieen, antibiootikumid ja mikrobioom, kuid ükski neist pole tõestatud.
Korduma kippuvad küsimused
Miks ma olen kurnatud, kui olen remissioonis?
Kas stress põhjustab minu haigushooge?
Kas ma vajan operatsiooni?
Kas ma saan reisida?
Seotud lugemine
- Crohni tõve eliminatsioonidieet selgitatult
- Mis põhjustab IBD-d? Geneetika, keskkond ja kasvav haigestumus
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Every citation below links to the original peer-reviewed record on PubMed or via DOI. Nothing here is a substitute for medical advice.
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